Next Steps

Many of you have asked about news concerning the next step for Cat. We have heard from the committee. Cat has been turned down at this time for the second transplant, because her lung function is too good (thanks to transplant #1). Her skin isn’t a factor. The fact that it gets harder by the day, is immaterial. The study is all about lung function. But we travel to Seattle again on Tuesday for a right heart cath on Wednesday and see Dr. Furst on Thursday. I think her heart is okay as well. It is hard to know how to pray. We want God’s best, of course, and don’t want to wish she were worse off but she does need this. It is interesting to be too healthy when she is so sick. This is the only transplant opportunity out there right now so we wait to see what pops up next.

Meanwhile, we also wait for the insurance to okay the IV chemo that is the next medical treatment and, at the moment, the last one to try. Dr. Furst will get that okayed eventually. He tells us not to worry about insurance stuff that he knows how to work the system. Mainly I’m sure, by being relentless about petitioning them for approval. He will also be working on the transplant committee to reconsider Cat for transplant #2, and he carries a lot of weight, so we wait.

Fortunately, she is feeling better in general. She has weaned off the drugs that were making her feel so much worse than usual. It seems that she has turned that corner just yesterday. She has been throwing up for 2 weeks and Thursday all day and Friday morning were pretty awful. But she is feeling better today (Saturday).

Thank you for caring,

Sally

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